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Your Rights

As a participant in a research study, you have numerous rights and will always have access to a contact from the Ethics Committee that approved the study to ask questions to about your rights, as well as the research team. Here is a list of your rights:

  • To have enough time to decide whether or not to be in the research study and to make that decision without any pressure from the people who are conducting the research.
  • To refuse to be in the trial at all, and to stop participating at any time after you begin the study.
  • To be told what the trial is trying to find out, what will happen to you, and what you will be asked to do if you are in the clinical trial.
  • To be told about the reasonably foreseeable risks of being in the study.
  • To be told about the possible benefits of being in the study.
  • To be told whether there are any costs associated with being in the study and whether you will be compensated for participating in the study.
  • To be told who will have access to information collected about you, and how your confidentiality will be protected.
  • To be told whom to contact with questions about the research, about research-related injury, and about your rights as a research subject. If the study involves treatment or therapy:
  • To be told about the other non-research treatment choices you have